Shelter from the Storm - by Joanne Hilden & Daniel Tobin & Karen Lindsey (Paperback)
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<p/><br></br><p><b> About the Book </b></p></br></br>A wise and compassionate guide to caring for a critically ill child.<p/><br></br><p><b> Book Synopsis </b></p></br></br>Critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. <p/> Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.<p/><br></br><p><b> About the Author </b></p></br></br><b>Joanne Hilden, M.D.</b>, is the Chair of the Department of Pediatric Hematology/Oncology and Medical Director of Pediatric Palliative Care at the Children's Hospital at The Cleveland Clinic in Cleveland, Ohio. <p/><b>Daniel R. Tobin, M.D.</b>, piloted the FairCare program for peaceful dying at the V.A. Hospital in Albany, New York. He is now expanding the program to a network of other hospitals and consulting for insurers on end-of-life issues. <p/><b>Karen Lindsey</b> is coauthor of <i>Dr. Susan Love's Breast Book</i> and <i>Dr. Susan Love's Hormone Book</i>.
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